Skip to main content

Re: Struggling to be

@Aonaran, I love your depth of thinking and use of metaphor to descibe your lived experience and thinking through and explaining. This bit...

"Anyway, my point is:  obviously I'm not pretending to be any Peter Duesberg, but I can't help feeling there's more to any mental illness I've personally experienced than the "experts" talk about.  It's a response to life, an attempt to right the balance of a tilted ship, and the focus on what's broken often masks what's keeping it afloat.  Maybe our own personal variant of the HIV spectre isn't where the real problem lies, and this drive to pathologize may make things seem manageable to the "experts" but I do wonder what it actually contributes to the people for whom this is their life."

I was diagnosed with a particular diagnoses last year with several 'co-morbidities'. As a medical 'label' they are useful in so much as the (available) treatment and potential for understanding the physical attributes of the particular diagnoses. Although truth be told they have no clue as to what 'causes' it.  I am not wed to that diagnoses in as much as use it to describe (but it only really touches just a part of what I experience) the lived experience. If I had presented on a different day (say a week after my back surgey and the terrible impact the aenesthetic and pain releif had on my mental health) i am sure I would have received a different diagnoses.

The system we live with has to have the pathologized descriptors so that those in the system, Doctors, Psychiatrists, Psychologists and MI health care workers feel that they are all on the right track. As people living with the condition/s it is evident (to me anyway) most of them haven't got a clue. This system fails at the first hurdle because every one of us, every one - has a unique mix of factors, experience, life, physiology, genetics etc. I see you will be quite clear if someone here responds but has not fully understood your point/s - I would like to ask - what difference does it make if we are 'pathologized' or not if the only systems in place to deal with our 'conditions' is structured in this way? To use your HIV/AIDS metaphor - if the treatments work to prolong life, educe symptoms and provide a quality of life, even if the boffins got it wrong at the 'cause' if the treatment works, it works... There may be better tratments or even a cure for the underlying causal agent if the cause is found to be something else (than HIV) but someone else needs to find that and prove it.

I have had the benefit of psychological counselling that definately does focus on "what keeps life afloat" and find this way more helpful, affirming and applicable than any psychoanalyses. I reckon the structures we have for damn near everything in this world are messed up badly, based on false premises, economic rationalisam, war & peace, armaments manufacture, dare I say patriarchy etc - we are all living in a dream/nightmare state where the people with power feed us lies and would keep us blind, and I am not a consipracy theorist, just a realist. The depressive side of this illness I live with always bottoms out in the depths when I try to unpack where it has all gone wrong and what I as an individual can do about it to change the world's story into one of hope, equality and peace. I see depression and despair as a fair response to the ills of the world, AND I know that I am a much less effective human being when I dwell there so do my very best to change my viewpoint and grasp onto hope as soon as I catch that I have fallen into a melancholic state which can be dyas, weeks or months later. I do try to do a re-set in my thinking once I catch myself squirrelling arounbd inn my own not-helpful thinking, not in a pollyannaish false positivity but by coming into the present and dwelling there, no pressure for as long as I can (a kind of nuetral thinking space just for a little while) until I take a bit of gladness in something - " ah! great! I heard that bird song and liked it. " must be on the up.

I heard during Mental Health Week on the radio that far more young people are living with anxiety and depression than ever before (taking into consideration the 'reporting' might be diffiernet than 30 years ago). That is not suprising, the world is a mess and the one's in charge seem blythe about their part in it. Having a depth of thought and consideration about our own lives, the state of the world, and these 'conditions' whatever thay are means we may be much more likely to also have a greater grasp and empathy for others. The great thing about these forums is he immense sense of good will have toward one another and their attempts to encourage each other, I love that, we get such little encouragement in our daily lives from others (or ourselves). So, even when someone doesn't quite 'get' me or seems to identify with something they themselves think rather than what I have said, i say 'thank you!" because they reached back and said 'me too' that is giving back expanding the "I" to We. Sometimes we will get that empathy wrong, but are not wrong in trying to shape it into something where we might acknowledge similarities and embrace shared experience, even if it means and it can only mean because we are inside sacks of skin that make us individuals, that it is not quite resonating right.

It is a pleasure to read your posts and depth of thought. I am glad you are here, Aonaran.

Re: Struggling to be

Thank you for your post. Comprehensive and erudite (is that the word?).<br>Much (if not all) of what you say certainly rings my bells. Someone said 'madness is a sane response to an insane world'. Is it us HERE that are MAD or the megalomaniac world leaders quite happy to sacrifice (without a moments thought) thousands upon thousands of people for their need for power? I've spent some time in hospital and really came to understand that on a psych ward is more sane than the outside world. <br>I have to admit to being a bit of a conspiracy free - One that comes to mind is the DSM V (the psychiatrists bible) - It has grown in thickness three-fold over the last ten years. Is it just a cynical, sinister means to 'Pathologize normality'? Good news for the pharmaceutical giants to sell more meds?<br>Liked the 'I' 'We' - that's a part of what is good living with 'different thinking' - There is a community of us.<br>I love my music, writing (at the mo. writing a series of children's books - but remain unpublished).<br>Look forward to chatting some more.<br>I'm pleased you are here Aonaran<br><br>Stan :)<br>

Re: Struggling to be

grrr, my like button interface has stopped working. Consider this 'liked' @stan

Re: Struggling to be

Hello @MoonGal

How are you ? Yeah I'm a follower of @Aonaran : but I must also acknowledge your very brave and intelligent messages !
I was watching channel 24 yesterday morning ...... Hearing some very nicely groomed lady intellectualising the young 15 year olds behaviour in Sydney ..... Rabbit ting on re: his influences she says clearly come from a mosque he attends ...... I say to my darling husband she has no idea Does she ?
I ask you @MoonGal ..... How can others pretend they know when this is not their experience ? How can a state policitian know what it's like to live with times of mental Ill health if he/she hasn't spent times living on the trashed living Arrangements or spent 6 months in a locked ward doing volunteer work ? Or witnessed Paychiatrists telling you how to live your life ?
How can they show true compassion when they don't understand what it's like to give and feed someone spending times of mental ill health who's wife has kicked you out of the house because you can't function very well because you've just had your medication changed ?

Re: Struggling to be

Absolutely just - mental health is the 'cinderella' in the world of health!

Re: Struggling to be

@PeppiPatty, thank you. For all my brave and intelligent messages I am sitting here weeping right now for what was, what was lost, how to move forward. oh, I am so FINE when I am intellectualising, telling the story. It is is the sitting in mySelf and feeling the maelstrom and the fear and the terrible, sense of loss of what I could of been, or should have been (without this terrible burden of illness and pain) and never was that leaves me gasping and shaking in some vulnerable puddle of grief. i get it. We use our considerable and scarily carefully constructed arguments to show our intelligence as a barrrier to the pai the shame the sadness. I just want, I want , Oh, I just want to be able to trust mySelf - that I feel what I feel, see what i see and that sometime before the last gasp I will have a sense of peace and belonging.. But then ther eie no "I" really, just a chemical soup boiling on the stove of life. <weep> For all my pretty words and sound arguments and twists and turns... I try to find meaning and purpose and a sense of some how making a valuable contribution to the world, is that just my ego saying I am not enough unless I am being a hero? Is it an over compensation for my feeling so bloody useless, and broken. 

We all struggle.


Re: Struggling to be

Hi MoonGal, I know it might not feel like it right now but just by posting an honest message with insight of not just you but i guess lots of people you are making a real contribution. I know what you mean by 'the intellectual' game - it's an easy one to play - harder to deal with real shit. Don't be hard on yourself - step by step. Posting and writing the poem helped me -Thanks 🙂

Stan..

Re: Struggling to be

Dear @MoonGal

 

Oh, Just a tic, I cannot find the message im answering to....

Former-Member
Not applicable

Re: Struggling to be

Hi moongal your post was so honest and sincere, thank you for being able to share that. So much of what you wrote is stuff that I can relate to. Up until this year I was always seen as the smart professional person who could just cope with it all... I hope that by letting your grief surface it gives you some relief and helps. Though the reasons for it are still there,
Here listening and caring,
Lj

Re: Struggling to be

Ahhh

Found your message. 

It feels like your dissappionted right now. When you wrote "SEnse of what I could have been...." Sence of what Ive lost......"

Jeepers, have I been there and well for me, it was losing my feminity as well, all those lost stuff. even hard work at bringing up children...my youngest son has become Mr self involved of the Century in WEstern Australia..........I didnt have anything to do with that?

But honey, look what you have now. This might not seem much .....just sane forums....but we have it now, We are the ones who make it warm and inviting as @CannonSalt mentions....it could have messed up imediately.

I remember people like @CherryBomb, @NikNik and more faves...@karma and @Hobbit and @Shimmer, they must have all felt, what a dangerous thing we are going to do.....we are going to offer people a place to grieve and get to know each other. 

A creative venture. Like what you felt you had in the past. 

Its difficult ......to take a breathe and try something new but maybe, maybe if you hang around for a little while, maybe you can see ............

different way of living?

Looking at a different way of seeing the world?

Is this a way of coping? You can say whatever you want here. can this be a new way of dealing with stress and anxiety?

Anne xx

I