Supporting and promoting the well-being of mental health carers and their families.
Mental Health Carers Austalia.
17-11-2017 06:21 AM
17-11-2017 06:21 AM
I've been really strugglin recently, but it has finally been paying off too. I've been searching for over a decade now for a way of living with schizoaffective disorder. It's been very difficult. The compulsive or circular thoughts are my biggest enemies, but I have treated them as friends, which is to say I spend most of my time with them, but I've recently learned how to accept them. well, maybe accept is a strong word. I've learned how to tolerate them. I simply acknowledge they are there and replace their powerful emotions with a simple sentence, it may not work well but it works better. I just tell myself "I am more than this, I am bigger than this, I am better than this." It started as a self-pity mantra, but eventually I realized it's the emotion behind the words rather than the words themselves, I'm a big mind (we all are) so I truly am more than this. I am bigger than this, and the the very fact that I am more and bigger means that I am better. It's still very tough and the mantra doesn't always help, but it's good to have a little refuge in my skull I can visit sometimes that will rest my soul for a bit. I never realized how very tired I am. not frustrated not sad or hateful of the thoughts, just weary, deeply weary. I feel like for the first time in a long time I'm moving down life's road again, not the manic pacing from elation to depression and back, but actually walking slowly forward through life. The scenery changes slowly but at Long Last it is changing. Glad to be here, which is a big deal for me.
Thank you all so much for your kind words. they have been instrumental in making me realize that I am Bigger, Better and More. Also, that I am far from alone, I'm sad you all have to be here but I am grateful beyond expression that I'm not Alone.
17-11-2017 03:40 PM
22-11-2017 09:51 AM
22-11-2017 09:51 AM
25-11-2017 04:14 PM
25-11-2017 04:14 PM
Hi there @Techunique,
It sounds like things have been very hard for you not only recently, but also for the last decade, where you have been trying to locate an answer for living with schizoaffective disorder. That must be exhausting. I'm very pleased to hear that you're learning to tolerate the intrusive and repetitive thoughts that you experience, are recognizing their presence, and are replacing the thoughts and emotions that surface as a result of this condition with positive self-talk. That is a big credit to you, as I understand that can be very hard. Though these intrusions can be overwhelming, it is great to see that you have a shelter and strategies to use that can put you at ease for a while. Although it has taken some time, it sounds like this approach is really working for you. Perhaps @Bunniekins and @frog can share there experiences on what they have found helpful? Have you been in touch with any mental health services @Techunique?
25-11-2017 04:29 PM
25-11-2017 04:29 PM
@Techunique Hi Techunique like yourself I have schizoaffectieve disorder. I am very lucky to to have found a wonderful psychiatrist who has me on the right medication ... funnily enough not enough to totally deaded my rather wild side but enough to keep everything under control.
I am currently studying which I am finding trains my mind to stop running away with itself which is also a good thing. Teaching it self control. I find self control hard as my other diagnosis is bp1 and when I become manic I am a bit over the top and do many things that I regret later on ...
I still have to learn more stratergies to keep reining myself in but I am getting there.
26-11-2017 07:19 AM
26-11-2017 07:19 AM
Hi @Techunique it sounds like you are making real progress. I know the deep weariness of being with troublesome thoughts. I have Bipolar 1 and GAD and feel like my mind has worked against me most of my life. I love how you said more, bigger, better. One of the things I try and do with my thoughts, with mixed success, is make space for them rather than focus on them - another form of acceptance. Russ Harris, who wrote the Happiness Trap, talks about turning off the struggle switch. He says that by struggling, wrestling with difficult thoughts we add another layer of suffering. I find that meditation and mindfulness helps me with acceptance, making space and turning off the struggle switch. It's been very slow - a six year journey so far - but like you I feel like I am taking steps along life's path. While I wish the weariness would ease, meditation is a little bit of respite. Thanks for sharing your story. I came to the forums looking for solidarity, and I found it.
14-08-2018 01:16 PM
14-08-2018 01:16 PM
Hello all! Sorry for the long absence but electricity has stopped being a part of my life by and large. Since last I logged on here I have moved almost two thousand miles and now I live isolated on the top of a desert plateau (called a mesa locally) I have no water electricity or any modern amenity. Bliss. Not without setbacks, obviously, but I feel that I have continued the progress I had started when writing this post. My mind is still unquiet but I am more able to deal. I haven't been hospitalized in a year and I am a qualitatively better person than I had been across the board. I love life, I, who had a weekly psychiatrist visit every week for a decade and started each session with "I still want to die." That person loves life. (It is worth noting that I do not type this from a manic state or wonderful emotion, I ended my relationship today, I'm depressed. But, I also Love Life)
As far as mental state I have 9-11 screaming whispering terrible tenants in my belfry on the daily and regularly see horrors and people who do not exist. I havent slept more than an hour in a night for three or four months and my anxiety is through the roof. But with my progressive system of analysis and emotional excersizes I'm pretty able to seem almost normal on any given day. Feeling good.
Overall.
14-08-2018 02:51 PM
14-08-2018 02:51 PM
@Techunique Hi Techunique you sound like you are having a fantastic adventure 🙂 I envy you (in a nice way). I am picturing you ontop of this mesa wind rushing through your hair looking out into the horizon. How fabulous is that! Am so happy that your health has been good with no recent hospitalizations (may it remain so). Just take good care of yourself. greenpea 🙂 xxxx
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Supporting and promoting the well-being of mental health carers and their families.
Mental Health Carers Austalia.
Our Mission
To be the voice of mental health carers to enable the best life possible.
Get In Touch With Us
We're here to support and promote the well-being of mental health carers and their families
Mental Health Carers Australia is the only national advocacy group solely concerned with the well-being and promotion of the needs of mental health carers.
Supporting and promoting the well-being of mental health carers and their families.
Mental Health Carers Austalia.
Our Mission
To be the voice of mental health carers to enable the best life possible.
Get In Touch With Us
We're here to support and promote the well-being of mental health carers and their families
Mental Health Carers Australia is the only national advocacy group solely concerned with the well-being and promotion of the needs of mental health carers.